Endometriosis is a painful and chronic full-body inflammatory disease that affects 1 in 10 people with uteruses, yet many patients struggle for years—sometimes decades—before receiving an accurate diagnosis and effective treatment. For too long, healthcare policies and insurance companies have failed to provide adequate coverage for the gold-standard treatment: excision surgery.
Introducing Endo Excision for All – a non-profit organization who is on a mission to change that. Through policy advocacy, education, and direct action, this organization is working to ensure that excision surgery is accessible and covered by insurance—because no one should have to suffer or go bankrupt to receive the right care.
Why Excision Surgery Matters: The Difference Between Excision and Ablation
If you or someone you love has endometriosis, understanding the difference between excision and ablation is critical—because one leads to long-term relief, while the other often leads to recurring pain and additional surgeries.
🔹 Ablation Surgery (The Standard, But Ineffective Approach)
- This is the most commonly performed surgery for endometriosis.
- Surgeons burn the surface of the endometriosis lesions using heat or lasers.
- Problem: Ablation only removes the visible portion of the disease, leaving deep-rooted endometriosis behind.
- Many patients experience pain relief for a short time, only for symptoms to return within months or years.
🔹 Excision Surgery (The Gold Standard for Treatment)
- Specialists carefully cut out endometriosis from the root, removing the disease entirely.
- This method offers longer-lasting pain relief and better health outcomes.
- Requires skilled surgeons trained in deep excision—many of whom operate outside of insurance networks.
Despite excision being the most effective surgical treatment, most insurance companies refuse to cover it. Instead, they only approve ablation, forcing patients into repetitive, ineffective procedures that fail to treat the disease at its root. Endo Excision for All is working to change that.
Fighting for Insurance Coverage: Why Advocacy Matters
Currently, insurance policies do not recognize excision as the necessary, life-changing procedure that it is. Instead, they classify it as “elective” or “experimental,” despite decades of medical evidence proving its effectiveness.
💡 Endo Excision for All is pushing for legislative changes that would require insurance companies to:
✔ Cover excision surgery as a medically necessary procedure
✔ Ensure that patients don’t have to pay out-of-pocket for superior treatment
✔ Reduce long-term healthcare costs by preventing multiple ineffective surgeries
By demanding policy reform, this organization is working toward a future where patients no longer have to fight just to receive the care they deserve.
Menstrual Equality: A Bigger Fight for Accessible Healthcare
Endometriosis is just one part of a larger issue—the ongoing failure of the healthcare system to provide accessible, affordable menstrual health resources.
🔹 Menstrual products should be affordable and widely available.
🔹 Workplaces should offer accommodations for those struggling with menstrual-related conditions.
🔹 Doctors should take menstrual pain seriously, rather than dismissing it as “normal.”
Endo Excision for All advocates for menstrual health policies that ensure no one is left suffering due to a lack of education, resources, or financial support.
Speaking Out: Raising Awareness & Breaking the Cycle of Medical Gaslighting
Medical gaslighting is a huge issue for endometriosis patients. Too often, doctors dismiss pain as “normal period cramps” or prescribe birth control as a quick fix, instead of investigating the underlying cause.
Endo Excision for All’s founder, Nicole Notar, has been outspoken about her personal battle with medical gaslighting. Through public advocacy, media appearances, and education efforts, she is helping others recognize the signs of medical dismissal and fight for the care they deserve.
Key Messages from Endo Excision for All:
✔ Endometriosis is a whole-body disease, NOT just a reproductive issue.
✔ Ablation is NOT an effective long-term treatment—excision is.
✔ Patients shouldn’t have to pay out-of-pocket for the care they need.
✔ Awareness, education, and legislative action are critical to changing the system.
How to Get Involved
Endometriosis patients deserve better options, better doctors, and better insurance coverage. If you want to support the fight for excision surgery access, here’s how you can help:
📢 Spread the word. Share Endo Excision for All’s mission with friends, family, and social media.
📝 Advocate for policy change. Contact lawmakers and demand better insurance coverage for excision surgery.
- Use these template letters for exact verbiage to send to your policy makers: Get Templates here
- Sign this petition: Petition to Establish an Insurance Code for Endometriosis Excision Surgery and Mandate Proper Training — Advocacy for Endometriosis Excision Surgery Insurance Coverage
💰 Donate to support the cause. Many patients struggle to afford care—your contribution can help change that.
📍 Follow & Support: Endo Excision for All Website
Final Thoughts: No One Should Have to Fight for Proper Care
Endometriosis patients already battle enough pain—accessing treatment shouldn’t be another fight. By pushing for insurance reform, medical education, and policy changes, Endo Excision for All is making real change in how this disease is treated.
If you’ve been dismissed, ignored, or forced into subpar care—don’t stop seeking answers. Some patients need to see 3, 4, even 5 doctors before finding one who listens. You deserve effective treatment. You deserve relief. And with the right advocacy, change IS possible.